Surgery...hospital visits...and doctor appts...oh my!

The title says it all. This is going to be about your surgery, hospital visits, and doc appts. Lets start with your hospital visits. They still continue...thats the bad part. The good part is that since we moved to Gilbert, we changed hospitals. So now you see doctors at Cardon Childrens Medical Center. Its a great hospital and we are so happy that we are there. You had a hospital visit in January of 2012. We ended up going to the ER for this one. You were not acting right and in a lot of pain and so we decided that we better just go to the ER since our first appt was not until Feb. So after spending a few hours with all the other sick people the ER doc felt that it would be good to admit you into the hospital for another clean out. When we went up to the room...it was amazing. The room was huge and we really felt good being there. The hospital staff was nicer, the doctors were nicer, the rooms were nicer...just everything felt so much better than PCH. If we had to be in the hospital...thats a good place to be. They really tried their best to make everyone feel at home. And we sure did! They even had a keyboard and mouse and you could get on the internet on the tv. That is all you did!! You spent most of the time in 1 position...playing the computer haha. We stayed for 4 days and did your clean out and then went home. There was no tests or anything this time around. But that is always a good thing. Next, ill talk about your surgery. When you were 3 you had surgery on your eyes to lift your eye lids. Your eye lids are droopy and so they will droop really low so its hard to see. Well we went to the doc again and he decided that it would be time to have surgery on them again because from the last surgery they started drooping again. So in March you had surgery to correct that. Well of course nothing can be easy with you. You ended up with an infection in both of your eyes and you ended up missing 2 weeks of school because of it. We were going every few days to the doc to get your eyes checked and make sure the infection went away. But it kept on holding on for some reason. Thankfully after 3 weeks it finally went away!! You did not like the drops we had to put in your eyes every few hours. But you got through it all like a champ and now your eyes are beautiful! I love seeing them. Ok now its time for the doc appts. Since we changed hospitals, we also changed doctors. You have a new GI that we really like. She is really good with looking at you and knowing what to do. Of course they make us do the whole clean out thing at home like your other docs did...but we found out that its clearly for insurance purposes only. The insurance needs to know that we tried everything we could and it failed and so we need to try at clean out at the hospital. Insurance will not cover the stay if they try to admit us straight from the office. Another doc we are seeing now is neurology. He is doing a bunch of tests on you to see if there is something that he can find. They are going to do a muscle biopsy on you to test your muscle for a few different disorders and syndromes. But its ok. They will put you to sleep for that test. It wont hurt you at all. Hopefully we find out some answers. This doc is great and he seems to really know a lot about what is going on with you. Well I hope that is a good update. Its almost your birthday! You are going to be 10!!! That is just crazy. Love you buddy... Mommy

Trying new things...

Once we moved back to Gilbert things started looking up for you. So we figured we would try putting you back into public school. I thought I was going to have to get a job and so the decision came easy. We knew that was what needed to happen. Well it turns out I didnt get the job I thought I was going to get, and so there was no need to put you back into public school. But we felt like we should keep you there. And we are glad we did. It was a great year for you. You learned and had a great time with your classmates. However, it was hard for you to keep up with your peers. You had a full time aide who would help you with anything you needed help with. And it was really good for you. Your grades showed good progress in most subjects. There were some other places you still need a lot of help with. But that's ok, it will come around. You were able to do book reports every month. You did a fun one when you had to do a biography of someone. You picked John Lennon. You dressed up as him and you presented to the class as him. And people were supposed to guess who it was. And no one knew who you were! You did such a great job. Another one was you had to demonstrate a skill that you know how to do. You picked playing twinkle twinkle little star on your keyboard. Your aide said that you did a great job! You didn't need help from anyone!! You were a super star playing your song and showing people how you played it. You sure have come a long way. Another good memory from school is your Greece party! You got to try different foods from Greece and you got to play games and learn a lot of facts. Most of which you already knew. You were supposed to wear a toga but I could not get you to wear one...haha. Well due to your health issues and many other factors, we can not keep you in public school. So once again we are putting you in AZVA where you do great. You are so excited and I know that you will do good. Love you buddy. Mommy